Gwendolyn, her dad, Bill, and her mom, Victoria, are fighting for the lives of infants.
You can be part of a miracle.
Showing posts with label SMA. Show all posts
Showing posts with label SMA. Show all posts
Tuesday, January 19, 2010
Monday, January 18, 2010
Help cure SMA
Sometimes we have the opportunity to make a difference...
SMA is the #1 genetic killer of children. The children are born healthy and their minds are never impacted. Eventually their bodies fail them. 50% die before their first birthday and 90% before their second. The National Institutes of Health has coined SMA as the disease closest to treatment and that a cure is possible with adequate funding.
My wife and I have had the privilege to get to know a family with a beautiful little girl who suffers from SMA. You can learn about Gwendolyn at her website Her parents, Bill and Victoria have worked like crazy to raise funds for research. Chase Commuity Giving is giving away $1 million to the charity that receives the highest number of votes on Facebook. The next five each get $100,000. If you are on Facebook, go to Vote for SMA and vote for the Gwendolyn Strong Foundation. If you aren't on Facebook, sign up and vote. $1 million dollars for research could be just what is needed and you could save the lives of thousands of infants.
SMA is the #1 genetic killer of children. The children are born healthy and their minds are never impacted. Eventually their bodies fail them. 50% die before their first birthday and 90% before their second. The National Institutes of Health has coined SMA as the disease closest to treatment and that a cure is possible with adequate funding.
My wife and I have had the privilege to get to know a family with a beautiful little girl who suffers from SMA. You can learn about Gwendolyn at her website Her parents, Bill and Victoria have worked like crazy to raise funds for research. Chase Commuity Giving is giving away $1 million to the charity that receives the highest number of votes on Facebook. The next five each get $100,000. If you are on Facebook, go to Vote for SMA and vote for the Gwendolyn Strong Foundation. If you aren't on Facebook, sign up and vote. $1 million dollars for research could be just what is needed and you could save the lives of thousands of infants.
Friday, August 08, 2008
Gwendolyn
In the midst of all of the craziness around our wedding - joy and stress, hope and fear, promise and more promise, I am reminded that life is not always so joyful and the issues we are facing are a blessing in every way. The problems that the wedding has presented are such small blips in life. Other problems are not blips.
This is a bit of the story of Gwendolyn Strong. The Strongs are a young family who live in Santa Barbara about whom I have learned.
You can help make a difference, if not for Gwendolyn, then for other families facing the same grim news of a diagnosis of SMA. Sign the petition for congress to provide needed funding to find a cure for this disease.
To learn more about Gwendolyn, check out the family blog.
This is a bit of the story of Gwendolyn Strong. The Strongs are a young family who live in Santa Barbara about whom I have learned.
You can help make a difference, if not for Gwendolyn, then for other families facing the same grim news of a diagnosis of SMA. Sign the petition for congress to provide needed funding to find a cure for this disease.
To learn more about Gwendolyn, check out the family blog.
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